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TV4 news piece on HD gene therapy trial
The Swedish channel TV4 published the news on the HD clinical trials that were positively described in media in late September. Professor Åsa Petersén was interviewed about the findings by TV4 and she emphasizes the need for cautiousness when interpreting the results, as they are not yet published in a scientific magazine or reviewed by…
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Professor Petersén comments on the recent positive topline results from a clinical trial with gene therapy in Huntington disease presented in a press release from uniQure
Last week, positive topline results from a clinical trial with gene therapy in Huntington disease were presented in a press release from uniQure. The news hit the headlines and spread fast through the HD community. Read Professor Petersén’s comments on these results in plain language for the wider audience in The Conversation and in a…
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Updated information on Huntington disease on the National Board of Health and Welfare’s webpage
The National Board of Health and Welfare in Sweden has published updated information on Huntington disease on its’ webpage. These recent revisions of the text have been made by Professor Åsa Petersén, Lund University. Link to the National Board of Health and Welfare’s webpage – in Swedish only (opens in a new window).
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Petersén at the EHA conference 2025 in Bucharest
Åsa Petersén will give several talks at the EHA conference, including one on emotions and behavior in HD, and she will also chair a session on clinical trials. The conference is arranged by the patients’ organization, the European Huntington Association, and is open to all. Find out more about the conference on EHA:s webpage (opens…
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Visit by the European Huntington Association
When in Sweden for their annual meeting, members of the European Huntington Association paid a visit to Lund on 28 August 2025. There they met with Åsa Petersén and Camilla Svensson, registered nurse, also working at the HD Clinic at Skåne University Hospital (SUS) in Lund, together with Åsa. Åsa showed them around the lab,…
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Petersén gives a talk at a symposium on neurodegenerative disorders in Vancouver, Canada
Petersén will give a talk on her work on Huntington disease at a symposium on neurodegenerative disorders at the University of British Columbia in Vancouver, Canada on September 8, 2025. There will also be a meeting for Petersén and other partners in the JPND funded delCAA-HD research team to discuss progress of the international collaborative…
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New article on HD published by TNU
TDP-43 is a protein involved i several severe brain disorders. Recently an increasing number of researcher have begun to investigate how the TDP-43 might be involved in Huntington disease (HD). Åsa Petersén’s research group, Translational Neuroendocrine Research Unit (TNU), have now published a scientific article studying the effects of TDP-43 in the brain’s hormone central,…
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Podcast about being a young relative of an HD-patient
The month of May is Huntington’s Disease Awareness Month and 15 May was Huntington Awareness Day. Åsa Petersén was invited to take part in a podcast about the disease, together with Jozefine, who is a carrier of the gene and related to a person diagnosed with HD. The podcast is produced by YTAN, Young Together…
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Work in progress: International guidelines for treatment of psychiatric symptoms
Development of international guidelines for treatment of psychiatric symptoms in advanced Huntington’s disease is in progress within the European Huntington’s Disease Network (EHDN). The working group focusing on “Behavioural Phenotype” in Huntington’s disease is addressing these guidelines. As part of the work, some members of the group recently met in Amsterdam, together with colleagues from…
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Petersén elected Deputy Chair of EHDN
The European Huntington’s disease network (EHDN), with more than 3000 members, gather healthcare professionals, researchers and families with Huntington’s disease. Petersén was elected to the Executive Committee in 2022 and is now Deputy Chair. Link to the EHDN webpage: EHDN.org
