Management

The Huntington Disease Center is lead by a steering group and a reference group, with meetings 4-5 times a year. The steering group reports to Region Skåne’s head of research, heads of Skånes universitetssjukvård, Psykiatri och habilitering, Medicinsk Service and also to the dean at the Faculty of Medicine.

Steering group:

Åsa Petersén (chair) – Professor in Neuroscience, Department of Experimental Medical Science, Lund University; Senior Consultant in Psychiatry, Adult Psychiatry in Lund, Division of Psychiatry, Rehabilitation and Medical devices.

Jesper Petersson – Head of Research, Region Skåne; Professor in Neurology, Department of Clinical Sciences, Lund University

Eva-Lena Brönmark – Registered nurse, Clinical nurse specialist in psychiatry, Head of Adult Psychiatry in Lund, Division of Psychiatry, Rehabilitation and Medical devices.

Håkan Widner – Associate Professor in Neurology, Department of Clinical Sciences, Lund, Lund University; Senior Consultant in Neurology, Division of Neurology, Rehabilitation Medicine, Memory Disorders, Geriatrics, SUS

Catarina Lundin – Head of Research, Medical services, Region Skåne; Associate Professor in Clinical Genetics.

Maria H Nilsson – Associate Professor in Physiotherapy, Senior Lecturer in in Health Sciences, focusing on rehabilitation in neurodegenerative diseases, Department of Health Sciences, Lund University/ Combined position: Memory Clinic, Skane University Hospital; Registered Physiotherapist.

Student representative – vacant

Reference group, linked to the steering group:

Isabella Björkman-Burtscher –Professor in Neuroradiology, Department of Radiology, Institute of clinical sciences, Sahlgrenska Academy, University of Gothenburg; Senior Consultant in neuroradiology, Sahlgrenska University Hospital, Gothenburg.

Fredrik Blomstrand – Representing industry, Associate Professor, Medical Director CNS Benelux and Nordic, TEVA.

Carina Hvalstedt – Member of the board, Riksförbundet Huntingtons sjukdom (HD patients’ organization); Manager at Sorbus Vårdboende AB; Registered psychiatric nurse.