Work in progress: International guidelines for treatment of psychiatric symptoms

2025-02-26
Development of international guidelines for treatment of psychiatric symptoms in advanced Huntington's disease is in progress within the European Huntington's Disease Network (EHDN). The working group focusing on "Behavioural Phenotype” in Huntington's disease is addressing these guidelines. As part of the work, some members of the group recently met in Amsterdam, together with colleagues from USA. EHDN "Behavioural Phenotype” working group in Amsterdam, together with colleagues from USA
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Petersén elected Deputy Chair of EHDN

2025-02-25
The European Huntington's disease network (EHDN), with more than 3000 members, gather healthcare professionals, researchers and families with Huntington's disease. Petersén was elected to the Executive Committee in 2022 and is now Deputy Chair. Link to the EHDN webpage: EHDN.org
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Sign up for the Information Evening on HD!

2025-02-24
If you wish to attend the Information Evening on Huntington Disease on 7 April 2025, sign up latest on 27 March 2025. Find out more on our Swedish page: Anmälan öppen till Informationskväll om HS 7 april 2025
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SAVE-THE-DATE: HD Information Evening, 7 April 2025

2024-12-20
Huntington Disease Center in Lund is inviting you to an information evening on 7 April 2025, 18.00-20.30 in the Belfrage lecture hall on BMC D15 in Lund. The evening will include update on clinical trials and current research status in Sweden and internationally, as well as talks on different aspects on Huntington disease: from social interaction to difficulty swallowing, dysphagia. Representatives from the national patients' organization (RHS) will inform about their activities, and there will…
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Watch the webinar on clinical trials!

2024-11-06
The webinar on clinical trials arranged by the European Huntington Association (EHA) in October, “Research insights: Latest updates on ongoing studies”, is now available online. You find it on EHA:s website
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Webinar on HD clinical trials

2024-10-21
On 23 October 2024, Åsa Petersén will be moderating the webinar "Research insights: Latest updates on ongoing studies", arranged by the European Huntington Association. The webinar will give information on ongoing clinical trials in the Huntington disease field. Representatives from companies with ongoing trials, or finalized, will be participating. The European Huntington Association is an umbrella organization for 43 national Huntington organizations, with more than 30 000 members around Europe. To participate in the webinar,…
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Petersén will give a talk on HD for young adults

2024-10-17
The Swedish patients' organization RHS is arranging a weekend on Huntingon disease for young adults on 18-20 October 2024 in Karlstad. There will be presentations on various topics, like genetic counselling, and the weekend offers an opportunity to network with other young adults and to share experiences. On Saturday Åsa Petersén will give a talk on HD research and will also present the latest updates in the field. For more information and the program, see…
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Welcome to Petersén’s talk on psychiatric health in HD

2024-10-01
On Wednesday 16 October, at 17.00-19.00, MultiPark Café is hosting an evening with lectures on "Psychiatric health in neurodegenerative diseases". Åsa Petersén will talk about "Psychiatric health in Huntington's disease". All talks are in Swedish. Link to the event on MultiPark's website
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RHS National meeting 2024

2024-09-16
The patients' organization, RHS, is inviting you to the national meeting in Gothenburg on 26 September 2024. Åsa Petersén will give an overview of the current HD research and the day will include information on guidelines for physiotherapy, and much more. The meeting will be held in Swedish. Sign up for the meeting latest on 16 September, by sending an email to info@huntington.se. Link to RHS website Program for Nationellt möte 26 september 2024 (pdf,…
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Kickoff for JPND project in Istanbul

2024-08-30
Together with researchers from Germany, Canada, Turkey and the Czech Republic, Åsa Petersén was awarded the JPND grant for the project Delineating the role of HTT Cis-Variants in the pathogenesis of Huntington disease. In Sweden the grant is funded by Vetenskapsrådet, the Swedish Research Council, and Petersén was awarded SEK 2 500 000. To initiate the project, a kickoff meeting was held in Istanbul in early July 2024, where all project partners met at Koç University…
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