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Professor Petersén comments on the recent positive topline results from a clinical trial with gene therapy in Huntington disease presented in a press release from uniQure
2025-09-30Last week, positive topline results from a clinical trial with gene therapy in Huntington disease were presented in a press release from uniQure. The news hit the headlines and spread fast through the HD community. Read Professor Petersén's comments on these results in plain language for the wider audience in The Conversation and in a statement as deputy chair for the European HD Network. Link to the The Conversation's website (opens in a new window)…
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Updated information on Huntington disease on the National Board of Health and Welfare’s webpage
2025-09-24The National Board of Health and Welfare in Sweden has published updated information on Huntington disease on its' webpage. These recent revisions of the text have been made by Professor Åsa Petersén, Lund University. Link to the National Board of Health and Welfare's webpage - in Swedish only (opens in a new window).
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Petersén at the EHA conference 2025 in Bucharest
2025-09-23Åsa Petersén will give several talks at the EHA conference, including one on emotions and behavior in HD, and she will also chair a session on clinical trials. The conference is arranged by the patients' organization, the European Huntington Association, and is open to all. Find out more about the conference on EHA:s webpage (opens in a new window).
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Visit by the European Huntington Association
2025-09-03When in Sweden for their annual meeting, members of the European Huntington Association paid a visit to Lund on 28 August 2025. There they met with Åsa Petersén and Camilla Svensson, registered nurse, also working at the HD Clinic at Skåne University Hospital (SUS) in Lund, together with Åsa. Åsa showed them around the lab, demonstrated samples and talked about her research. The EHA team also got to know about the multidisciplinary team at the…
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Petersén gives a talk at a symposium on neurodegenerative disorders in Vancouver, Canada
2025-09-01Petersén will give a talk on her work on Huntington disease at a symposium on neurodegenerative disorders at the University of British Columbia in Vancouver, Canada on September 8, 2025. There will also be a meeting for Petersén and other partners in the JPND funded delCAA-HD research team to discuss progress of the international collaborative research efforts.
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New article on HD published by TNU
2025-06-04TDP-43 is a protein involved i several severe brain disorders. Recently an increasing number of researcher have begun to investigate how the TDP-43 might be involved in Huntington disease (HD). Åsa Petersén's research group, Translational Neuroendocrine Research Unit (TNU), have now published a scientific article studying the effects of TDP-43 in the brain's hormone central, hypothalamus, which is affected in HD. Read more on the MultiPark website (opens in a new window).
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Podcast about being a young relative of an HD-patient
2025-05-22The month of May is Huntington’s Disease Awareness Month and 15 May was Huntington Awareness Day. Åsa Petersén was invited to take part in a podcast about the disease, together with Jozefine, who is a carrier of the gene and related to a person diagnosed with HD. The podcast is produced by YTAN, Young Together Against Neurodegenerative Diseases, a digital platform for young relatives of persons with a neurodegenerativ disease. YTAN is financed through a…
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Work in progress: International guidelines for treatment of psychiatric symptoms
2025-02-26Development of international guidelines for treatment of psychiatric symptoms in advanced Huntington's disease is in progress within the European Huntington's Disease Network (EHDN). The working group focusing on "Behavioural Phenotype” in Huntington's disease is addressing these guidelines. As part of the work, some members of the group recently met in Amsterdam, together with colleagues from USA. EHDN "Behavioural Phenotype” working group in Amsterdam, together with colleagues from USA
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Petersén elected Deputy Chair of EHDN
2025-02-25The European Huntington's disease network (EHDN), with more than 3000 members, gather healthcare professionals, researchers and families with Huntington's disease. Petersén was elected to the Executive Committee in 2022 and is now Deputy Chair. Link to the EHDN webpage: EHDN.org
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Sign up for the Information Evening on HD!
2025-02-24If you wish to attend the Information Evening on Huntington Disease on 7 April 2025, sign up latest on 27 March 2025. Find out more on our Swedish page: Anmälan öppen till Informationskväll om HS 7 april 2025
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